Patient Stories

Read the latest patient stories from Children's Medical Center Foundation 


Diagnosed in July 2020 with rhabdomyosarcoma, a rare type of cancer that forms in soft tissue, Hank had developed a softball-sized tumor in his abdomen that was pushing on other organs.


Diagnosed with leukemia just before his third birthday, Isacc's care is now overseen by the growing oncology team at Children’s Medical Center Plano.


Preston was only a freshman in high school when a surgeon in the emergency room at Children’s Health told him he’d have to remove one of his testicles after a tumor that had caused it to swell to three times its normal size.


After spiking a 106 degree fever and having uncontrolled vomiting, Kasen was rushed to Children's Health Plano. Within three days, he had started chemotherapy for leukemia.


Born with Alagille syndrome -- a rare, life-threatening liver disease, Axel found a new chance at life through his liver transplant at Children's Health.


The moment when Lincoln’s tumor grew – so big that he couldn’t breathe through his mouth and struggled to breathe through his nose -- was one of the scariest for Lincoln’s parents, Shelly and Chris.


Davi was born with a congenital heart defect and has a superpower of making the world feel like Candyland – happy, sweet and colorful.

Tanner and Caleb

Brothers Tanner and Caleb are like a lot of siblings. They tease and fight – all in good natured brotherly love. And they’re also each other’s biggest defenders.


“My granddaughter is everything to me. I wanted the best for her, and I knew Children’s Health had the expertise to give us answers and get Kadence on a healthier path,” Kadence's grandmother Deondriea said.


Diagnosed with cerebral palsy, the team at Children’s Health supported Edison to ‘be the boy he wants to be.’


Zoey was 18 months old when she was rushed to Children’s Health after a near-drowning accident. On a feeding tube and barely moving, a long road to recovery began.


Leone's parents dress up as superheroes during his treatments at Children's Medical Center Dallas to make him feel like he can defeat anything - even cancer.


As one of our spunkiest patients, ZaZa loves showing off her superpowers of running fast and showing cancer who’s boss.


A refugee from war-torn Yemen, Rania’s childhood was chaotic, and she struggled with post-traumatic stress disorder and anxiety. Searching for control in an unpredictable world, she focused on one thing she could determine: how much food she ate. 


Born with Down syndrome, Valeria already saw a number of specialists at Children’s Health for asthma and sleep apnea before she was diagnosed with leukemia.


Born with a rare liver disease, Annabella was five months old when she was put on the list for a liver transplant at Children’s Health. And a few months later, her family got the call: There was a new liver for Annabella.


“I want Eli to have a normal life,” Eli's dad said. “And the only thing I want to be different about him is the scar on his chest, which is a badge of honor for going through what he did.”

Leo and Reagan

In June, Reagan combined his love of baseball and his desire to increase awareness of sickle cell at a baseball tournament that was held on World Sickle Cell Day.


While Carlos and his family waited for a new heart at Children's Medical Center Dallas, they found friendship and support from fellow heart patient families.


The pain in his right leg started as a limp Jaxon thought he could walk off, but by the weekend, he had trouble even standing up.


Fighting cardiomyopathy during COVID-19, Harrison has been waiting patiently for his new heart at Children's Health.


A victim of online bullying, Abby questioned her worth. 'What if I wasn't here anymore?' she thought. That's when her journey led her to the SPARC program at Children's Health.


If you spent time with the always-smiling Myra, you’d never believe she was in an unthinkable battle against mixed phenotype acute leukemia for most of her life.


Research treatment at Children's Health has allowed Lylah a chance to do ballet and play baseball, even while battling Spinal Muscular Atrophy.


Crossing the finish line at a 5K is something Mitchell wasn't sure he'd ever be able to do. Because of physical therapy done at Children's Health, now he's running as much as he can.


Arriving at 24 weeks and five days, Kepley James entered the world at 1 pound, 10 ounces. Still so small that you could see her lungs through the skin on her chest.  


As they peered over the isolette in the NICU, Jennifer and Angie saw past the crooked smile of Elli’s cleft lip and the congenital heart defect and saw a child they loved instantly.


“As of that moment, our lives would never be the same,” Arya's mom said. “I felt strongly that if God had chosen me to care for her, then my job was to do whatever it takes to do exactly that.”


Looking at this bubbly 5-year-old, you wouldn’t know she had a complex medical history, and that when she was a baby, the Children’s Health foster clinic saved her life.


Adopted at birth, Addison suffered from frequent ear infections and severe balance issues, which compromised her hearing and delayed her walking until she was almost 18 months old.


One of our Halloween-loving patients, Noah, made a special trip to Spirit Halloween to get a behind-the-scenes look at how their spooky animatronics work.


Ava loves Broadway musicals, is obsessed with sharks and wants to be a marine biologist. And like many people, she hasn’t always liked how she looks.


Her aunt taught her how to apply blush to accentuate her cheekbones and eyeliner to brighten her eyes. But no one prepared Camila on how to fight cancer.


A muggy Friday evening in late May, wearing a polyester blue gown over a shirt and tie, is not the typical stuff of teenage dreams. But Davion fought for his life to not miss this moment.


“We’d sang her a million-and-one songs trying to put her to bed or rock her to sleep at night, and she’d never heard any of it,” Finley's mom said. “She’d never even heard us say, ‘I love you.’”


Her future was bright. The sky was the limit. Until one day last December when it almost all came crashing down.


Elaine, a mother of four, doesn’t take for granted the chance to rock her youngest, Obie. For the first two months of his life, Elaine couldn’t hold him. An incubator at Children’s Health was his crib.


Friends and neighbors of PGA golfer John Senden used to ask how to improve their golf game when they’d see him. Now, they want to know how his 15-year-old son is doing.


For six months, a Children’s Health hospital room adorned with cutouts of butterflies, hearts and unicorns has been a temporary home for 2-year-old Zena and her mom, Kenda.


During her journey at Children's Health, Hanna collected more than 700 Beads of Courage to represent different milestones or treatments, more than any other patient in the trauma program.


Elianna was born with two severe heart defects and had her first heart surgery when she was just 13 days old – her heart was the size of a walnut.