In 2007, 15-month-old Shayna was diagnosed with congenital heart defects – mitral valve regurgitation and left coronary artery atresia. Dawn spent 11 agonizing days hoping the cardiac specialists at Children’s Medical Center would be able to save Shayna’s fragile life. The caregivers in the Heart Center not only gave Shayna a new lease on life, but they also instilled hope in Dawn and her family.
After those first days at Children’s, Dawn knew she wanted to give back. “The Heart Center has brought light to the darkest place of my life,” Dawn said. “The people and the resources available to Shayna and our family have taken the unthinkable and made this journey bearable. Everyone has been
extraordinary — from the child life specialist who works on Saturdays and prepared my then 3-year-old to see her sister in the ICU, to the nurse who told Shayna that she was lucky she got to wear her heart monitor to preschool so she could show her friends the music box that was recording the music in her heart.”
In 2010, Dawn found out about the Red Balloon Run & Ride and realized it was the perfect way to give back and honor Shayna at the same time. She created Team Shayna, and with the support of family and friends, the team raised more than $1,000 in one day.
“Team Shayna has made this diagnosis and this life of a mother to a chronically ill child something that I can live with, something that I am proud of,” Dawn said.
Team Shayna has given more than $35,000 to the Heart Center through Red Balloon Run & Ride fundraising, and more than $9,000 has been raised for the 2014 event. Dawn finds ways to get the entire family involved in raising money each year. In 2011, one of their favorite family traditions was established — the Team Shayna Annual PINK Lemonade Stand.
“Team Shayna will raise money so the next 15-month-old girl that is spending time in the cardiac ICU after open-heart surgery can look forward to a life of family, birthday parties and ballet,” Dawn said. “I ask you to come out and join us for the Red Balloon Run & Ride this year. Support Team Shayna and help us thank the Heart Center for not only saving my daughter’s life, but also for bringing so much joy into lives which could potentially have been filled with so much pain.”
Team Shayna supports two important programs in the Heart Center at Children’s — home monitoring and research.
The money Team Shayna raised in 2010 and 2011 has directly impacted the lives of many children through the Safe-At-Home Program.
Newborns with single ventricle cardiac anatomy are the most challenging and complex of all infants born with congenital heart disease. This diagnosis is associated with the highest rates of morbidity and mortality in current practice. The Safe-At-Home Program is part of a national quality improvement initiative to decrease mortality rates.
All neonates born with a form of single ventricle physiology that undergo surgical or hybrid palliation may participate in the program between the first intervention/surgery and second surgery. The program allows patients to return home to their families and local support system while still receiving the monitoring and care needed to lower readmissions to the hospital and mortality rates.
To date, of the 81 patients who completed the Safe-At-Home Program at Children’s, inpatient days have decreased by 17.7 days, major event readmissions are down by 95 percent and current mortality rates are less than two percent. Sixteen patients are currently enrolled in the program.
With Innovative Research Team Shayna’s funds also support pioneering pediatric cardiothoracic research that will make a difference in the lives of patients for years to come.
With funds from 2012, Dr. Joseph Forbess, Division Director of Pediatric Cardiothoracic Surgery at Children’s, purchased a Nikon fluorescence microscope that will be used by his team as they develop new approaches for improving cardiac stent technology. Dr. Forbess, who holds the Pogue Distinguished Chair in Pediatric Cardiac Surgery Research and is Chief of Pediatric Cardiothoracic Surgery at UT Southwestern Medical Center, said the microscope will allow research physicians and scientists to see and study cells that could not be previously observed.